Bartha knoppers biography of barack obama
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Published in final edited form as: Nat Med. 2016 May 5;22(5):464–471. doi: 10.1038/nm.4089
Abstract
Rapid and affordable tumor molecular profiling has led to an explosion of clinical and genomic data poised to enhance diagnosis, prognostication and treatment of cancer. A critical point has now been reached where analysis and storage of annotated clinical and genomic information in unconnected silos will stall the advancement of precision cancer care. Information systems must be harmonized to overcome the multiple technical and logistical barriers for data sharing. Against this backdrop, the Global Alliance for Genomic Health (GA4GH) was established in 2013 to create a common framework that enables responsible, voluntary, and secure sharing of clinical and genomic data. This Perspective from the GA4GH Clinical Working Group Cancer Task Team highlights the data aggregation challenges faced by the field, suggests potential collab
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To advance our understanding of human health and disease, we need to share genomic and related health data. The Framework for responsible sharing of genomic and health-related data, or the Framework for short, is guided bygd human rights, privacy, non-discrimination, and procedural fairness. All products developed by GA4GH build on the foundation of the Framework.
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Benefits
- Provides a foundation for enabling responsible genomic and related health uppgifter sharing
- Centres human rights in decisions about whether and how to share data
Target users
Researchers, clinicians, clinical laboratories, data generators, data custodians, data access committees, ethics review committees, data protection authorities, funding agencies, developers, research participants & patient communities, security officers, and research institutes
Image summary: The principles and aims of the Framework guide responsible sharing of geno